Daughter with Lichens

To the Mom whose daughter has Lichens. Ten years ago my four month daughter would not hold her head up when place on her tummy. The Dr. said she was lazy so every few days i would watch her struggle and cry. Finally at my request she was seen by a specialist who said she had S.M.A. Spinal muscular atrophy is genetic and fatal in most cases. She died just before her first birthday. I sometimes feel guilt but push those feelings aside. We have two healthy daughter now and I do the best i can. Start by forgiving yourself for the past. Be kind, gentle and strong. Reassure her that the future holds better treatments. Masturbation is harmless and natural. Keep things in perspective. Frank B.

 

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